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XXY News







This page sometimes notes the occasional updates I do to the site.

Verified every outside link on the site. They all work as of today, Sept 17/2012.

"Living with Klinefelter Syndrome, Trisomy X and 47,XXY: A Guide for Individuals and Families to X and Y Chromosome Variations" is now available. It is a quite comprehensive overview of the genetics involved in X and Y chromosome aneuploidy, as well as providing information on medical issues, educational and psychosocial concerns, and transitioning to adulthood. Many participants of XXYTalk completed the online survey that helped to provide information covered in the book. It is available for order through Amazon (www.amazon.com) as well as on the KS&A website, www.genetic.org. My purpose in writing it was to make available a well-researched guide, particularly for those with new diagnoses and for parents with prenatal diagnoses. I have wanted to do this for the 25 years since my son, now an adult, was diagnosed when I was 5 months pregnant. It is currently being formatted for e-readers, and should be available on Amazon in a few weeks, if you prefer not to get a print copy. (added May 27, 2012)

Verified every outside link on the site. They all work as of today, July 1, 2010.


Added both a Chinese and Spanish translation of the Robert Bock paper Understanding Klinefelter Syndrome,: A Guide for XXY Males and their Families. Written by: Robert Bock, Office of Research Reporting, NICHD. NIH Pub. No. 93-3202 August 1993. Information is old but, in general, still an excellent resource. Please check the International page for more details. (added June 1, 2010)

Also, details of the 2010 U.S. National Conference on X and Y Chromosome Variations, a joint project of AAKSIS and KS&A, have been announced. (added June 1, 2010)


After a long hiatus from this site that included relocation, a new job and marriage I am back and working again. This would have occurred much sooner, but because of a number of odd happenings, such as overwriting the boot sector of my hard drive, misplacing the passwords to my server space, and finally having the administrator of the site stop paying for the server space and having the site disappear along with the domain name . . . So here it is again, but as 47XXY.com. As of today all the links are current and every page is working. Any problems please contact me at 47xxyorg@gmail.com Thanks.  (January 20, 2008)


For the most timely calender of events please visit Stefan's Klinefelter Syndrome Support Group Home Page.


Celebrate Intersex Awareness Day: October 26, 2004.
Intersex Awareness Day intends to create a "day of action" similar to Take Back the Night, National Coming Out Day, or International Women's Day. (added September 10, 2004)

Association francophone Klinefelter, a site devoted to francophone XXYs and their families. (added September 2, 2004)



A Spanish translation of the complete "Understanding Klinefelter Syndrome: A Guide for XXY Males and Their Families," by Robert Bock. ENTENDIENDO SÍNDROME DE KLINEFELTER UNA GUÍA PARA MASCULINOS XXY Y SUS FAMILIAS (added April 30, 2002)

New XXY/Klinefelter syndrome site with information especially for the state of Ohio, U.S.A. (added April 24, 2002)

The International Society of Psychiatric Genetics at NYU School of Medicine is beginning a 47XXY study. (added April 16, 2002)


Compiled a helpful Guide to choosing a doctor. (added December 23, 2001)

Low testosterone levels connected to possible higher incidence of Alzheimer's Disease.  (added Oct. 8, 2001)

The Winter 2001 Klinefelter's Syndrome Support Group: Victoria (KSSG/V) newsletter is available for download here in PDF format. The file is approximately 64k. (added Sept. 22, 2001)


Letter from Mats Svensson published by "Svenska Psykiatriska Föreningen" (The Swedish Psychiatric association) in their publication "Svensk Psykiatri" (Swedish Psychiatry), Årgång (volume) XXV nr 3/01. The letter describes how and why psychiatric caregivers are neglecting XXY/Klinefelter patients especially in regards to their need for testosterone treatment and what T does for us.  (added Sept. 22, 2001)

Problem with Androgel?.  Please read this report.

Brain morphology in Klinefelter syndrome: extra X chromosome and testosterone supplementation.  Abstract from Neurology 2000 Jun 27;54(12):2218-23.


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This page first created: May 24, 1999
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