Links Especially for Parents
Links Especially for Parents:
Behavior Management
Genetics
Learning Disabilities
Legal Assistance
Medical
Medical & Insurance Advocacy
Parenting
Special Education
Transition to Adult
The following links have been compiled and found useful by a varied group of parents who also have a child with a sex chromosome aneuploidy (SCA). Sites that contain primarily American material are indicated by the initials U.S. at the end of the description
Behavior, the gathering place for Mental Health and Applied Behavioral Science Professionals.
National Society of Genetic Counselors, Inc. NSGC. NSGC will promote the genetic counseling profession as a recognized and integral part of health care delivery, education, research, and public policy.
Central Auditory Processing Disorders
Central
Auditory Processing (CAP) refers to a group of skills which we use to
interpret and store what we have heard. CAP skills typically
develop in the first five years of life along with receptive and
expressive language. Children who have a delay or disruption in
the development of these skills may have Central Auditory Processing
Disorders (CAPD).
Pediatric Development and Behavior, has articles and handouts on subjects such as ADHD, disabilities, parenting, and sleep. Recommended
NIMH booklet on ADHD
The Harriet Lane Links (formerly Pediatric Points of Interest). This is a huge site with varied resources. Well worth the time
Autism
and Children with Developmental Disorders and Brain Injury. "Our
goal is to provide the most comprehensive site available for the
discussion of medical and physical therapies for the treatment of brain
injured children, hence creating a networking structure for parents and
physicians alike. This website will provide viewers a new way of
looking at neuro/metabolic disease, and offer a creative opportunity
for involvement in the exploration of medicine and healing."
Medications most frequently used in the treatment of common neurobiological disorders of childhood.
This 39k PDF article, 9 pages, was written by a doctoral child
psychologist candidate. The original text was written completely
in caps and that has not been changed, so the text is quite dense, but
a good resource, nevertheless.
disABILITY Links - internet resources for Special Children
Neonatal Diseases and Abnormalities. A large site concerned primarily with genetics.
Prenatal Diagnosis.
Prenatal diagnosis employs a variety of techniques to determine the
health and condition of an unborn fetus. Good site and highly
recommended.
American Academy of Pediatrics
Medicaid Managed Care & Children with Special Health Care Needs U.S.
Families USA U.S.
HandsNet empowers organizations
to integrate effective online communications strategies to strengthen
their programs and policies for children, families and people in
need. U.S.
Family Village, a global community of disability-related resources.
The Father's Network Our
mission is to celebrate and support fathers and families raising
children with special health care needs and developmental disabilities.
Parenting - Common sense tips on
dealing with whining, homework, tantrums, positive reinforcements,
teaching consequences, family meetings and more.
Parenting 0 to 3 year olds "Children are not things to be molded, but persons to be unfolded"
How I got a 504 Accommodation Plan
A 504 plan can be used for items such as hearing aids, and accommodations for
other physical disabilities. U.S.
About Special Ed advocacy resources
Federation for Children with Special Needs is an extensive and comprehensive Special Needs site and is highly recommended. U.S.
The Council for Exceptional Children (CEC)
is the largest international professional organization dedicated to
improving educational outcomes for individuals with exceptionalities,
students with disabilities, and/or the gifted. CEC advocates for
appropriate governmental policies, sets professional standards,
provides continual professional development, advocates for newly and
historically underserved individuals with exceptionalities, and helps
professionals obtain conditions and resources necessary for effective
professional practice.
Developmental Delay Resources (DDR)
is a nonprofit organization dedicated to meeting the needs of those
working with children who have developmental delays in sensory motor,
language, social, and emotional areas.
U.S. Department of Education U.S.
ldonline an interactive guide to learning disabilities for parents, teachers, and children. U.S.
The National Information Center for Children and Youth with Disabilities (NICHCY) is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22). Spanish language resources, also. U.S.
Orton-Gillingham training and information
This site for educators and parents offers teacher tips for multisensory education, articles, and educational links for help with phonics, reading, dyslexia, learning disabilities.
Pacer programs help parents become informed and effective representatives for their children in early childhood, school-age and vocational settings. Through knowledge about laws, resources and parents' rights and responsibilities, families are better equipped to work with agencies to obtain appropriate services for their sons and daughters. U.S.
PTIs, parent centers in each state provide training and information to parents of infants, toddlers, school-aged children, and young adults with disabilities and the professionals who work with their families. This assistance helps parents participate more effectively with professionals in meeting the educational needs of children and youth with disabilities. U.S.
Empowerment Zone
Want to know about the Freedom of Information Act or how a bill in the
US
becomes law or how to write letters to the editor? How about
leadership
training or SSI or social skills issues? What about sexuality
issues or
relationship issues? You will find a huge online library of
great documents on these subjects and more. This site offers
information, ideas, and software related to the theme of empowerment --
helping individuals and communities
achieve self actualization and full citizenship.
If you have found a useful parent site that is not listed here, but should be, please e-mail us at 47xxyorg@gmail.com and we'll check it out.
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