International XXY Sites
International:
Australia
Belgium
Canada
Denmark
France
Germany
Japan
Netherlands
Norway
Russia
Spain
Sweden
U.K.
Ukraine
United States:
Regional
AAKSIS
KS&A
Ohio
XXY Talk
Genetics Resource Center
Genetic Alliance
Information XXY Sites:
Robert Bock
Cynthia Smyth
Stefan's KS Support
For Parents
XXYY
Australia
Klinefelter's Syndrome Support Group of Australia (K.S.S.G)
P.O.Box 683, Castle Hill NSW 1765, AUSTRALIA; phone: 0407262398.
Belgische vereniging voor het syndroom van KLINEFELTER Bilingual site - Flemish and French.
A French translation of the Second Edition of the What is XXY? page on this site without hyperlinks.
Association francophone Klinefelter, a site devoted to francophone XXYs and their families.
Organisation Internationale des Intersexués is "Dedicated to the Advancement and Diffusion of Knowledge and Understanding of Gender/ Consacré à la promotion et la diffusion des connaissances sur les questions de genre." The site has information in several languages: French, English, Spanish and Dutch.
10 idées fausses sur l'intersexualité
Denmark
The Turner Center. Excellent and balanced source of information on XXY.
FranceBelgische vereniging voor het syndroom van KLINEFELTER Bilingual site - Flemish and French.
A French translation of the Second Edition of the What is XXY? page without hyperlinks.
10 idées fausses sur l'intersexualité
Germany
Deutsche Klinefelter-Syndrom Vereinigung e.V. DKSV
Japan
Welkom op de website van de Nederlandse Klinefelter vereniging
XXY Klinefelter - Foreningen I Norge
A Russian translation of the Second Edition of the What is XXY? page. Hyperlinks are in English, though, not Russian. This translation is a 136k PDF document.
Spain
ENTENDIENDO SÍNDROME DE KLINEFELTER UNA GUÍA PARA MASCULINOS XXY Y SUS FAMILIAS Escrito por: Robert Bock Oficina de Informar Sobre Investigación. NICHD.
SÍNDROME DE KLINEFELTER-GRUPO DE AYUDA MUTUA
Sweden
Svenska XXY/ Klinefelterföreningen
Ukraine
http://www.ibis-birthdefects.org/start/ukrainian/uklinef2.htm
Klinefelter's Syndrome Association. A nation-wide Self-help and Support Group for Klinefelter Syndrome adults, children, their partners, and their families in the U.K. and Ireland.
Klinefelter Organisation (KO), formerly the Klinefelter's Syndrome Club UK (KSCUK)
United States
AAKSIS
The American Association for Klinefelter Syndrome Information and Support (AAKSIS) is dedicated to enhancing the quality of life for individuals affected by Klinefelter Syndrome, 47XXY, or one of its variants. Through knowledge, research, and education, AAKSIS seeks to advance greater awareness and understanding of this medical condition among the general public and the medical, psychological, and educational professions, while supporting affected individuals and their families.
Klinefelter Syndrome & Associates (KS&A)
The mission of Klinefelter Syndrome and Associates is to:
- Educate
- Encourage research
- Foster treatment and cures for symptoms of sex chromosome variations
XXY/Klinefelter syndrome site with information especially for the state of Ohio.
Our mission is to provide the means for all of us with Klinefelter Syndrome, XXY, and Variants to interact with one another including those who are keenly interested in our well being. Check it out at XXYTALK.
National Newborn Screening and Genetics Resource Center
Provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers and government officials.
Genetic Alliance
The Genetic Alliance is an extremely important resource: "Only with active consumer participation and focus on consumer issues will new genetic policies reflect the recommendations of those with first-hand experience and protect those who are most likely to be impacted."
Understanding Klinefelter Syndrome,: A Guide for XXY Males and their Families. Written by: Robert Bock, Office of Research Reporting, NICHD. NIH Pub. No. 93-3202 August 1993. Best XXY site on the net.
Diagnosis and Treatment of Klinefelter Syndrome, by Cynthia Smyth. Many physicians underestimate the prevalence of Klinefelter syndrome and so fail to recognize its more obvious features. Increased awareness of its effects on physical, psychological, and social development should help to dispel persistent misconceptions about the condition and enable earlier diagnosis and more effective treatment.
Klinefelter Syndrome Support Group Home Page. Stefan D. Schwarz's home page.
Klinefelter Syndrome? Or is he XXY?. Great page for parents, by Terrin Pelham. XXYY variant One of the few sites on the net with any information about XXYY.
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