International XXY Sites
International:
Austria
The KS Story "You are not alone"
Australia
Canada
China
France
Germany
Israel
Italy
Japan
Netherlands
Norway
Russia
Spain
Sweden
U.K.
Ukraine
United States:
Regional
AAKSIS
KS&A
XXY Talk
Genetics Resource Center
Genetic Alliance
Robert Bock
Cynthia Smyth
Stefan's KS Support
For Parents
Austria
Austrian Klinefelter Support
Klinefelter's Syndrome Support Group of Australia Klinefeltersaus@hotmail.com
A French translation of the Second Edition of the What is XXY? page on this site without hyperlinks.
Organisation Internationale des Intersexués – Organization Intersex International
is "Dedicated to the Advancement and Diffusion of Knowledge and
Understanding of Gender/ Consacré à la promotion et la diffusion des
connaissances sur les questions de genre." The site has information in
several languages: French, English, Spanish and Dutch.
Understanding Klinefelter Syndrome,: A Guide for XXY Males and their Families. Written by: Robert Bock, Office of Research Reporting, NICHD. NIH Pub. No. 93-3202 August 1993. 中文.
A French translation of the Second Edition of the What is XXY? page without hyperlinks.
Association Francaise du Syndrome de Klinefelter
Deutsche Klinefelter-Syndrom Vereinigung e.V. DKSV
Cos'è la Sindrome di Klinefelter?
Welkom op de website van de Nederlandse Klinefelter vereniging
Frambu
XXY Klinefelter - Foreningen I Norge
A Russian translation
of the Second Edition of the What is XXY? page. Hyperlinks are
in English, though, not Russian. This translation is a 136k PDF
document.
ENTENDIENDO SÍNDROME DE KLINEFELTER UNA GUÍA PARA MASCULINOS XXY Y SUS FAMILIAS Escrito por: Robert Bock Oficina de Informar Sobre Investigación. NICHD.
Sweden
Svenska XXY/ Klinefelterföreningen
Ukraine
http://www.ibis-birthdefects.org/start/ukrainian/uklinef2.htm
Klinefelter's Syndrome Association. A nation-wide Self-help and Support Group for Klinefelter Syndrome adults, children, their partners, and their families in the U.K. and Ireland.
Klinefelter Organisation (KO), formerly the Klinefelter's Syndrome Club UK (KSCUK)
United States
AAKSIS
The American Association for Klinefelter Syndrome Information and Support (AAKSIS) is dedicated to enhancing the quality of life for individuals affected by Klinefelter Syndrome, 47XXY, or one of its variants. Through knowledge, research, and education, AAKSIS seeks to advance greater awareness and understanding of this medical condition among the general public and the medical, psychological, and educational professions, while supporting affected individuals and their families.
Klinefelter Syndrome & Associates (KS&A)
The mission of Klinefelter Syndrome and Associates is to:
- Educate
- Encourage research
- Foster treatment and cures for symptoms of sex chromosome variations
Our mission is to provide the means for all of us with Klinefelter Syndrome, XXY, and Variants to interact with one another including those who are keenly interested in our well being. Check it out at XXYTALK.
National Newborn Screening and Genetics Resource Center
Provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers and government officials.
Genetic Alliance
The Genetic Alliance is an extremely important resource: "Only with active consumer participation and focus on consumer issues will new genetic policies reflect the recommendations of those with first-hand experience and protect those who are most likely to be impacted."
The KS Story "You are not alone" Written by: Iain W McKinlay 47,XXY, and with an introduction by Milton Diamond. The KS Story is the culmination of twelve years ongoing study and an emotional journey through the workings of the congenital chromosome condition Klinefelter’s Syndrome (KS).
The book also offers a glimpse into the various aspects of Klinefelter’s Syndrome; showing how it affects individuals and
those who love, care and treat them. The KS Story has been compiled by a person with Klinefelter’s Syndrome (karyotype: 47,XXY), from reputable medical, research
and support group sources, and with the help and support of several UK and international scientists in the fields of biology,
cytogenetics, endocrinology, neuroscience and sexology. 8,000K download.
Please also read "Read me First, A Message from the Compiler".
Iain can be reached at theksstory@btinternet.com
Understanding Klinefelter Syndrome,: A Guide for XXY Males and their Families. Written by: Robert Bock, Office of Research Reporting, NICHD. NIH Pub. No. 93-3202 August 1993. Best XXY site on the net.
Diagnosis and Treatment of Klinefelter Syndrome, by Cynthia Smyth. Many physicians underestimate the prevalence of Klinefelter syndrome and so fail to recognize its more obvious features. Increased awareness of its effects on physical, psychological, and social development should help to dispel persistent misconceptions about the condition and enable earlier diagnosis and more effective treatment.
Klinefelter Syndrome Support Group Home Page. Stefan D. Schwarz's home page.
Klinefelter Syndrome? Or is he XXY?. Great page for parents, by Terrin Pelham.
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